Thursday, April 18, 2013

Register with API for Info on Alz

Photo by Ian Sane
A sponsored post on behalf of Alzheimer's Prevention Initiative (API). 

Researchers are working hard to understand the risks and causes of Alzheimer's. Some are working on medications to slow down symptoms.

Long before clinical signs are apparent, the brain develops plaques and tangles. Some of the cutting-edge research focuses on how these plaques and tangles are formed, how they might be removed--or better yet--how they can be prevented from forming.

You can be part of an online community that shares current information about general brain health, Alzheimer's prevention, and future clinical trials.

To loan support to the prevention of Alzheimer's, please register  with API to receive information about current research such as the clinical trials conducted by the Banner Alzheimer's Institute (BAI).





I volunteer at a skilled nursing home where I observe many residents living with some form of dementia, including Alzheimer's disease. On Mondays, I call bingo.  After the game, I stop by the common area to visit with some of the residents who don't attend bingo anymore.  I tell one resident how much I like her afghan. 

Rebecca tells me that she's waiting for her mother to come pick her up.  If true, this would be remarkable, given that my friend is in her mid 80s.  However, I recognize that as a person with Alzheimer's Disease, she's prone to hold on to long-term memories of her childhood more easily than holding onto short-term memories of what she did that morning.  

I ask Rebecca to tell me about her family's farm, validating her need to claim a sense of home.  But at the same time, I'm trying to distract her from the idea that her mother is on her way. Maybe if we travel down those country roads through conversation, she will gain some satisfaction. 

Many residents in nursing homes have Alzheimer's or another form of dementia, especially those in their 80s and 90s.  Alzheimer’s is the sixth-leading cause of death in the United States and the only cause of death among the top 10 that cannot be prevented, slowed or cured. Yet.

Healthy brain.
Image by Nathaniel Burton-Bradford
Most people who acquire Alzheimer's have little indication this will happen--unless they consider advanced age as the highest risk factor. Nearly 1 in 3 Americans over the age of 85 is diagnosed with Alzheimer's. 

See this 8 minute video for more information about projections, strain on caregivers and economic impact of Alzheimer's Disease.

Others have a form that has a genetic marker.  The Alzheimer's Prevention Initiative is affiliated with a research organization that has been conducting a study with families predisposed to acquiring Alzheimer's, which involves an early onset. This means that the person is younger than 65 at onset; some are  in their 40s when they begin symptoms.

If you have read the novel Still Alice, it gives a fictionalized account of a woman with early onset dementia. It also shows her adult children deciding whether they want to undergo genetic testing to see if they will contract this devastating disease.  Beyond the pages of the book, there is hope that that a cure can be found for both forms of Alzheimer's. But a cure is going to require some investment, even if the investment is just a little of your time.

For more information about the Alzheimer's Prevention Initiative, the registry and the scientists from the Banner Alzheimer's Institute, explore the links at endalznow.org

Let's create a brighter future by travelling down the road of Alzheimer's prevention together. Register today and tell a friend since more than 1/3 in the U.S. have a personal connection to Alzheimer's Disease.

Related:

Movies Depicting Alzheimer's Disease - List of 33 films w/trailers for 9 of them
Mild Cognitive Impairment
Prevalence of Dementia as a Diagnostic Tool
Is It Dementia or Delirium?
Sundowning: Agitation in the Evening

6 comments:

  1. The statistics on this are just astounding. We all need to work together to defeat it.

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  2. Wow, 1 in 3! If this was a younger person's disease ever resource would be thrown at it!!

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  3. Alzheimer's is such a sad way to end a life. Sad for the victim and even sadder for the family members.

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  4. The results and effects of Alzheimer's really steals all of the memories and non - recorded history we receive from our older loved ones.

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  5. I cannot imagine how difficult it must be to care for someone with Alzheimers.

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  6. The statistics on this are just astounding. We all need to work together to defeat it.

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    ReplyDelete