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| Published September 10, 2013. |
Journalist Katy Butler supported her aging parents through two very different trajectories in their final years.
She describes their final years in her 2013 book
Knocking on Heaven's Door: The Path to a Better Way of Death.
Her father, Jeffrey, experienced a stroke and then a series of medical problems that deteriorated his quality of life. Most notably, he had cognitive problems due to vascular dementia.
However, the bulk of Butler's book addresses the decision to give her father a pacemaker so that he could withstand an operation to repair a hernia.
In the years that followed, Butler and her mother, Valerie, regretted that decision. When his memory failed, his personality changed, and his mobility faltered, they tried to have Jeffrey's pacemaker switched off. However, the ethics of that decision was questioned repeatedly.
After watching Jeffrey's life prolonged well past a quality of life acceptable to him and his loved ones, Valerie chose to reject medical interventions when she started experiencing serious heart problems just a couple of years after the death of her husband.
Instead, Valerie chose palliative care and died without having to spend her last months or years in and out of hospitals and under the care of family or paid caregivers.